Top 10 Truths – My Learnings

For parents of kids with disabilities/neurodiversities, our participation in our children’s education is WAAAAAYYYY different compared to parents of neurotypical/non-disabled children.

For blog post on that topic: The Non-Death Loss for Parents of Disabled Children in Education, All Over this Province

Here are my top 10 learnings for me.

  1. Teachers and counsellors aren’t nearly as educated in disability and mental health issues as I assumed. I gave them way more credit and trust than I should have.

2. My advocacy of applying the Duty to Accommodate was essential to my children getting an education. The difference between my advocacy efforts pre-using human rights law and post-using human rights law is night and day.

3. The human rights code supersedes classroom teacher’s autonomy.

4. Generally, education staff know very little about human rights law and education law. This is truly a failing. This type of education wouldn’t be complex to teach either. I think districts would save themselves so much money and complexities if their staff were more aware. This can all be taught in a simple 2-hour workshop.

5. Find an advocacy buddy. Another parent out there who knows what you are going through is essential for survival. I had no idea this was exactly what I needed and I am so glad she found me.

6. I had no idea learning about external complaint systems would be so vital.

7. Through everything, I would need to find the good people in the education system and stick to them like glue. There are really good people out there. Rare birds. Diamonds. And the system is killing them slowly.

8. We need our own care plans. Kids get IEPs for education. We need PCPs (Parent Care Plan). We need steps, strategies, and a review every few months.

9. I had no idea I was this strong, this determined, this capable. I have more layers to me than I ever thought.

10. I love my children. I love your children. And I will fight for both.

“this family needed help beyond what I’m trained for” (para 58)

This was a statement by made by the Acting VP in a human rights decision.

X by Y v. Board of Education of School District No. Z, 2024 BCHRT 72

[58]           Y asked the Acting VP in cross examination how the break from the classroom would have been restorative for X had it happened at home. The Acting VP replied that “Mom knows best”, noting that X was “totally dysregulated”, placed in a challenging classroom, and needed space. The Acting VP said that X spoke a lot about his Dad during this time, and how he missed him. He observed, “this family needed help beyond what I’m trained for.”

This has me asking…

What are educational staff trained for?

AND

When professionals, such as occupational therapists (OT), psychologists, or speech-language pathologists, make recommendations, why are some parents having issues with getting these recommendations placed in their child’s Individual Education Plan (IEP)?

The kinds of education that teachers have for disabilities vary greatly and in my opinion, extremely lacking. Huge gaps. They hold similar beliefs and biases as the general public. I have learned the hard way that some teachers have zero training in this area. There are educational staff who have, on their own, focused their professional development in this area and are extremely valuable. There is a huge sliding scale of knowledge and skill between educators and administrators.

We already know that the human rights code supersedes classroom teacher autonomy.

So above all, they need to provide an equitable education. If they are ignoring or refusing to implement professional recommendations, aren’t they taking a HUGE risk?

If by ignoring professional recommendations, the child isn’t able to access their education equitably and there is harm that occurs, I’d be filing a human rights complaint.

It has been quite a SHOCKING discovery to me, just how little education staff know about disabilities. Especially invisible ones. Some people are very knowledgeable. However, the number of people working in education who have little to zero knowledge is stunning. And scary. And makes complete sense how so many children experience real trauma at school, and so many are being homeschooled unable to return to school.

Here is a report compiled by Jenn Scharf titled Stories of Exclusion 2021. These are a collection of 60 stories told by parents.

I don’t think our education system is fair.

To anyone.

Everyone is being set up to fail. My heart goes out to the educational staff expected to create magic and miracles with such a scarce system. But, if you are ignoring professional recommendations and putting your own personal perspective in its place when you lack such training and expertise, I have no sympathy for you.

I do have sympathy for the child who may be harmed by your willful ignorance. I have sympathy for the family who will now be put in the position of continued advocacy, yet again, and may be considering filing a human rights complaint so their child can get an education.

Is the education system struggling with the concept of inclusion, or is it struggling because not enough people have the knowledge and skills to make it work?

And then add the impacts of scarcity in education

And then add ableism.

AAAAAHHHH ok…. now this all makes sense.

This is why we are all struggling.

This is systemic. Multi-dimensional systemic issues.

And if someone who is reading this thinks…. well they are now starting to have a class on the topic of disabilities in universities, isn’t that something?

It clearly isn’t enough.

Clearly.

Edit: A parent on my Facebook page commented after reading this blog “Not to mention a lot of the disability training they do get is outdated and ableist….” – Excellent point!!

The BC Human Rights Code Supersedes ALL other Laws, if Conflict Arises

This is the BC Human Rights Code.

Code prevails

4  If there is a conflict between this Code and any other enactment, this Code prevails.”

This is why human rights law is our strongest form of advocacy.

It doesn’t matter what the school policies are.

It doesn’t even matter what the policies are that are written by the Ministry of Education and Child Care.

It doesn’t even matter what the School Act says.

The Human Rights Code supersedes everything.

The Supreme Court of Canada has already made it crystal clear. It supersedes all laws.

Insurance Corporation of British Columbia v. Heerspink, 1982 CanLII 27 (SCC), [1982] 2 SCR 145

The Human Rights Code of British Columbia

When the subject matter of a law is said to be the comprehensive statement of the “human rights” of the people living in that jurisdiction,

[Page 158]

then there is no doubt in my mind that the people of that jurisdiction have through their legislature clearly indicated that they consider that law, and. the values it endeavours to buttress and protect, are, save their constitutional laws, more important than all others. Therefore, short of that legislature speaking to the contrary in express and unequivocal language in the Code or in some other enactment, it is intended that the Code supersede all other laws when conflict arises.”

Even the Accessible BC Act.

https://www2.gov.bc.ca/…/accessibility/legislation/summary

Scroll down to almost the bottom.

Why doesn’t the law mention the Human Rights Code?

In British Columbia, the Human Rights Code prevails over all other laws. This is written in the Human Rights Code. Repeating this in the proposed law would not change this and may cause further confusion.

Not all education staff are aware of human rights and specifically human rights and how it is applied in education.

I offer you three links of education law.

Duty to Accommodate – https://www.kbpath.com/information/

Education Law – https://www.kbpath.com/education-law/

Understanding Exclusion – https://www.speakingupbc.com/understanding-exclusion/

All of our human rights education law is written in case law created by tribunal members when they make their decisions.

Yes, our children are protected by the human rights code, but these rights are not limitless. Our children’s rights are protected as they are DEFINED under the human rights code.

That means their rights are limited by the legal test that the BC Human Rights Tribunal uses, under the Code. You are not allowed to discriminate against our kids in school, without a bona fide and reasonable justification. And that leads us to read case law to find out, what that means. Lots of case law. That leads us to the Duty to Accommodate to explain what the school is responsible for and what we are responsible for.

So that means…

If the school is quoting their school district policy about not having parents attend an IEP meeting, that will conflict with the duty to meaningful consultation that is defined by case law. Hewko v. B.C., 2006 BCSC 1638 para 343-361.

It doesn’t matter what policy says what, they need to engage in meaningful consultation with us, as defined by human rights law.

In the same breath, I can assure you, that teacher classroom autonomy does not supersede the human rights code. So no matter what teachers think about their classroom autonomy rights, the Human Rights Code supersedes all of that, and your child’s human rights are above their preferences of how they manage their classroom.

It really is a systemic failure that education staff know so little about human rights and their responsibilities. It shouldn’t fall on parents to teach them this.

Accommodations are not extras. They aren’t optional. They aren’t earned with good behaviour. Your child’s teacher has the legal responsibility to provide your child with an equitable education. Period.

If you feel your child is facing discrimination, not getting the accommodations they need and the school isn’t consulting with you, use human rights law to advocate for your right to be consulted with regarding your child’s education. And, if you want to file a human rights complaint, I suggest you contact the BC Human Rights Clinic for help.

Schools fall under the SERVICE category.

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Discrimination in accommodation, service and facility

8   (1)A person must not, without a bona fide and reasonable justification,

(a)deny to a person or class of persons any accommodation, service or facility customarily available to the public, or

(b)discriminate against a person or class of persons regarding any accommodation, service or facility customarily available to the public

because of the Indigenous identity, race, colour, ancestry, place of origin, religion, marital status, family status, physical or mental disability, sex, sexual orientation, gender identity or expression, or age of that person or class of persons.

(2)A person does not contravene this section by discriminating

(a)on the basis of sex, if the discrimination relates to the maintenance of public decency or to the determination of premiums or benefits under contracts of life or health insurance, or

(b)on the basis of physical or mental disability or age, if the discrimination relates to the determination of premiums or benefits under contracts of life or health insurance.

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To read case law decisions connected to human rights law, visit www.speakingupbc.com and go to my Human Rights Decisions (Cases) tab. This is not all cases, but I think it’s a great starting point.

Human rights-based advocacy is our sword and our shield.

#Education#Advocacy#HumanRights#Disability

Dear Advocates,

This needs a re-post!

I want to share an important story with you all. I LOVE animal documentaries. Absolutely love them. There is so much information about how life works, by watching and learning from nature. For example, Elephants walk incredible distances, and as they move, they change their environment in major ways. One way is by knocking over and tearing up dead trees that end up falling into waterways. As they do this, there is a fish species that depends on these logs to create nurseries to lay their eggs so they are protected. Without these dead trees in the water, their eggs would be eaten. This fish species is only able to survive because elephants pass through their area.

Every single person in this group who is part of a PAC, or advocacy organization, if you are supporting someone else in their advocacy efforts, if you are working as a professional, or if you are advocating for your own child, we are all elephants. We have no idea the impact our advocacy is making. We are tearing down dead trees, and just like how the elephants have no idea the impact they are having on this fish species….we will actually never know, truly….how deep or helpful to others our advocacy is impacting. (Hint: schools also systematically do things so you feel you are hitting a wall, and they never want you to know how powerful you actually are.)

If you are having a day, a week, or a month, of wondering if you are getting anywhere, or you are wondering if what you are doing is pointless. Always, remember the elephants. Your work is having an impact. Conversations change people. You are making a difference. You are helping other people. You may not see the impact immediately or ever, but everything we all do builds. It’s the little things that matter. Keep going elephants. The school year is almost coming to an end.

(I originally wrote this in the spring.) So, actually….. the school year is just beginning.