This is my personal understanding and definition of rights-based advocacy. I would answer that question by saying,
“Rights-based advocacy is when you advocate through the lens of the human rights code, use various legal authorities and policies to support your advocacy, and are communicating to the school your child’s unmet disability-related needs. We then advocate for the school to remove the barriers our child is experiencing so they can access an equitable education.”
For this blog, I am going to focus on the second part.
Rights-based advocacy doesn’t just include policy and law, but we need to be able to communicate to the school that our child has disability-related needs, and that they are experiencing barriers.
Now, the bottom line is that this isn’t really our responsibility to figure this stuff out. It’s actually the schools, and this responsibility is connected to multiple human rights decisions.
However, teachers aren’t trained in every disability and every combination of disabilities, and we know our kids. This is the collaboration part of the accommodation part. They have a duty to consult with us. We can contribute and assist them in creating an effective IEP by helping them identify our children’s disability-related needs and help focus their thinking on being able to identify barriers so they can make a plan on how to remove them.
People don’t naturally think in this way, so this is a skill we need to learn as well and help our kids’ teachers to think this way too.
The system needs a lot of work, but it’s not going to overhaul itself tomorrow. Today we aren’t living in our dream education fantasy land, we are living in a chronically underfunded resource constrained system with high rates of burn out. So given the cards that we have been delt, what is the best we can do in this situation to support our children in school?
Whatever situation our child is struggling with in school we need to ask ourselves some questions.
- Is there an unmet disability-need here? (They could be experiencing all sorts of unmet needs, It may not be necessarily connected to their disability)
- If it is connected to their disability, what is the unmet need?
- What is the barrier preventing this unmet need being met?
Now let’s apply this to an example.
Ryan has ADHD. Ryan tends to be more distracted, moving around a lot at the end of the day, and is engaging in social behaviours that other students in the class don’t like. He is taking their pencils and erasers and hiding them, and is saying things (teasing/taunting) that evokes a reaction from them that is negative. This is consistent every day.
When the teacher relays this information to the parent, they think about it and later send an email to the school with their thoughts.
The parent first wonders what the disability-related needs could be related to this situation. People with ADHD need more movement, do better with creative hand on tasks, and struggle sitting. It can be physically painful for them to sit. Their bodies will force them to move. People with ADHD do very well on tasks they are interested in and it is extremely difficult to focus on tasks you have no interest in. They also can require more mental stimulation. Kids with ADHD also have higher relationship needs and connecting with their teacher so they can learn will be more important to them.
They think about these disability related needs and wonder how much movement Ryan is getting during the day, and why they are struggling more so in the afternoon. Their curiosity is that they are wondering if Ryan has been sitting to much during the day and is getting restless and bored with too much pen to paper work. Ryan is then doing things that they find are more mentally stimulating and creating drama in the class is more interesting than doing schoolwork.
Typical classrooms don’t fit the needs of a lot of kids with ADHD. The barrier could be a personal physical barrier – that he is forced to sit too long. The next barriers could be informational or communication – he may not understand the assignments or it fit how he processes information. Classroom teacher management could be the barrier – he finds the teacher too strict and after listening to this all day his more anxious and so he is distracting himself with other things. It could be he is not interested in what he is working on, and his education isn’t hands on enough and too much pen to paperwork. It could be a relational barrier – he isn’t connected to his teacher and thinks his teacher doesn’t like him so he disconnects more at the end of the day wanting to leave and wish he wasn’t there. It could be an attitudinal barrier or teacher philosophy barrier – that they value pen to paper work over other ways of learning. It could be many barriers. It’s hard for us to know what the barriers are because we are not in school. So this is where communicating with our child’s teacher is going to be very important and to bring up the idea of barriers and trying to brainstorm together what the possible barriers could be.
Could creating more scheduled movement breaks during the day, replacing some of the written assignments with more hands on creative projects that are led by him decrease some of the behavoiurs we don’t want to see and improve his focus to help him last all day? Could the teacher making an effort to check-in with him more often during the day help with building the relationship?
We won’t really know what will work or what won’t work until we try it. We know our kids, but we don’t know what they are like in an education setting 5-days a week when we aren’t in the room and they are on their own. The environment they navigate in school to survive the day and home is completely different.
Even being aware of all of our child’s potential disability-related needs will most likely require us to do quite a bit of research and really know and understand our child’s disability. And then we need to consider their unique personality traits and who they are as people. Disabilities don’t present themselves exactly the same in every person. Disability is also fluid and what a person has capacity for on one day wont necessarily be consistent for all days. No wonder everyone is confused and accessibility can be a struggle.
The more we are informed, the more we can effectively advocate for our child.
For more information on types of barriers and accessibility law, please read my blog Barriers, Barriers, Barriers.